Look Me in the Eyes

Eye Contact – Linda Hanson Denmark

Look Me in the Eyes

“Are you listening to me?
Look me in the eyes when I’m speaking.”
It hurts
But I can look at your eyes
Blue eyes with lots of gray
Dry eyes that never cry
Like my eyes are crying
Because you hit me
So I will look at your eyes
So I will hear what you are speaking
But I can’t hear you
When I look at your eyes
It hurts

By Linda Hanson Denmark

Humans are supposed to be able to read other peoples eyes. I have no idea what exactly they are supposed to be reading in the eyes. I am not wired for that. I can make eye contact but with quite different results.

When I was a child, eye contact was forced. I was afraid of the consequences if I did not look at my parents eyes. The result? I had a great fear of blue eyes most of my life because of my abusive father’s blue eyes, which made looking at any blue eyes extra difficult. My mom had hazel eyes, with very interesting colors and patterns. Her eyes made me squirm and I had to focus on the colors. I decided that she had turtle eyes. Eye contact hurt and never did help me understand anything better.

When I first look at someone else’s eyes, I always focus on one eye, then wonder if I should be looking at the other eye instead. I can’t for some reason, look into both eyes at the same time. I may look back and forth rather quickly until I settle on which eye to look at. Then begins an in depth study of colors, patterns, eye shape, condition, small veins showing on the white of the eye, size of the pupil, etc.

I study the colors in the makeup if it is a female wearing makeup, making a mental palette of the colors whether I like them or not. Loose eyelashes, eyelash color, length, thickness; nothing is missed. It sometimes feels like artificial intelligence in action. Scan, scan, scan, record.

If the other person is wearing glasses it gets even more complex. I study the lens to see if it is convex or concave, tinted or not; study the frames, and am absorbing and making mental images for my already very full library of memories.  Meanwhile, the words spoken by the person I am attempting eye contact with are gone. I usually have to ask the person to repeat what they said and briefly look away while I listen.

Some people believe that eye contact can be taught. If the neurological wiring is not there for reading whatever we are supposed to be reading, I think trying to teach eye contact to an autistic might be about as effective as teaching a blind person to make eye contact. The blind person may be able to learn to look in the direction the voice is coming from but they will not see.

Could the person demanding or expecting eye contact feel that without eye contact the autistic is not listening? The opposite is true. Could it be that the person expecting eye contact is uncomfortable not being able to read the eyes of the person to whom they are speaking, like the eyes can somehow mirror back their words to see how the hearer is affected by the words? That won’t work if the autistic person can’t do the looking and the hearing at the same time.

Is eye contact really for the benefit of the autistic person? Is it so that we will look less autistic? Is sameness a requirement of being human? Am I less human because I can’t hear the words and look in the eyes simultaneously?

Define human.

Complex PTSD and Autism

Quote from Wikipedia:

“Adults with C-PTSD have sometimes experienced prolonged interpersonal traumatization as children as well as prolonged trauma as adults. This early injury interrupts the development of a robust sense of self and of others. Because physical and emotional pain or neglect was often inflicted by attachment figures such as caregivers or older siblings, these individuals may develop a sense that they are fundamentally flawed and that others cannot be relied upon.”

Complex PTSD becomes even more complex when the abuse happens to an autistic child. Coping mechanisms that neurotypical children have may not work at all for an autistic child. In our family, the father was abusive and the mother enabled and assisted with the abuse, and sometimes just ignored it. Never did she step in to protect her children. Three of my sisters, two biological and one adopted, developed multiple personality disorders from the abuse and have required years of therapy to help them make somewhat normal lives for themselves. One of my adopted brothers has an alcohol problem and the other became an abuser himself. I also spent several years in therapy years before the autism diagnosis was made. I was at that time (1990s) diagnosed with PTSD, Selective Mutism, Recurrent Depression and Disassociative Identity Disorder. I went through extensive testing several years ago and the diagnosis of Autism Spectrum Disorder and Obsessive Compulsive Disorder were added. So yes! It is complex indeed!

What happens with my C-PTSD is that rather than there being just one trigger or a few triggers, there are many unforeseen triggers. The reaction when triggered is like a reliving of the original experience, whether it was a rape, having my neck broken, being strangled, or being shocked with the stock prod. I feel exactly what I felt when the original trauma happened and it is often incapacitating. If I am in a public place, it can result in quite a scene as I experience what happened all over again. I can taste the blood in my mouth from having been hit across the face with my father’s belt for refusing to lower my pants, just from observing a child about to get a spanking and resisting. I can feel the waves of electric shock go through my body and collapse as silent screams resonate through my mind, from hearing someone mention using a stock prod. It goes on and on because I am not even able to remember all the traumatic events that happened during the seventeen years of living with my “parents”. Often I have to go through several episodes of a recurring memory, reliving it over and over until my adult mind can convince me that it is not going to happen again, that it is over. Then I can have a brief respite until something else triggers a reaction. This is Complex PTSD.

Often I will express myself with poetry while working through a remembered trauma. An interesting observation I have made when looking back at my poetry is that it seems to be written by a child at the level of development I was at when the trauma happened. I attribute this to the raw power the memories had to return me to the actual incident, as though having to go through it all over again.

The following poem was written after my husband suggested getting a stock prod to control a particularly mean buck goat we were having issues with.

The Stock Prod

When I think about the stock prod
I think about the pain
Of never knowing when our dad
Was going to strike again.

He’d often catch us unawares
Or if we turned our backs
He’d jab us from behind and
We just never could relax.

Sound sleep was impossible
With shocks to start the day
It made him laugh to see our fear
To him it was just play.

An instrument of torture
For kids and livestock too
‘Til the animals all trembled
When he stepped into their view.

One day old Babe, the milk cow
Was so consumed with fear
That when he tried to milk her
She just wouldn’t let him near.

She fought and kicked and trembled
In fear of Master Jack
So he picked up a two by four
And broke the milk cow’s back.

She needed a good lesson
Or so our father said
It didn’t teach her anything
‘Cause then the cow was dead.

So then instead of milk to drink
We had half a ton of meat
They ground her up cause she was tough
We kids declined to eat.

And then out came the stock prod
We cleaned our plates up quick
While daddy sat there grinning
As he jabbed his power stick.

So if you think the stock prod
Is a necessary tool
And the goat needs a good lesson,
Can’t we just send him to school?

By Linda Hanson Denmark – 2003

I often communicated with my husband through writing or poetry. Because of my difficulties expressing myself because of my autism, I usually was unsuccessful in explaining things or making a good case for something I felt strongly about. After my husband read this poem, he abandoned the idea of getting a stock prod and agreed to let me sell the offending goat and get a nicer one.

Child abuse when inflicted on any child can cause Complex PTSD if it occurs on multiple occasions. However, the same abuse on a child that has autism, can complicate and increase the difficulties the child already has to face every day for life. All child abuse is wrong. How wonderful for all the autistic children who have loving parents who cherish them and are helping them through all the daily challenges! I hope that in some small way, sharing my story may help even one child. Perhaps even one parent can speak up and protect her child.

Complex PTSD does not go away.

Autism does not go away.

One of these can be prevented.

Communication

Communication One

They said that communication is words.
Spoken
Written
Ink and vocalizations filled to the brim with
meanings explicit and hidden.
But they mustn’t be laboured.
You mustn’t be slow.
You mustn’t scream.
Wail
Cry
Use your words they said.
But not those words,
and not like that.

Communication Two

They said that communication is about eye-contact.
But not all the time.
There are rules, and they concern;
arbitrarily intermittent durations,
expressions, extents of openness,
frequency of blinking.
Not an exhaustive list.
“You look me in the eyes”
But it hurts.
But then I can’t hear the words
But then I can’t use the words
you told me to use
the way you told me to use them.

Communication Three

Next they said that communication is about
body language.
Gestures that communicate
part of what isn’t spoken
part of what is spoken.
“Why do you do that with your hands?”
“Don’t just point, say something.”
It’s like the words, not like that.
Don’t move like that.
Don’t hit yourself.
Why was hitting me only ever for you?
Why is communication never about understanding?

-INSA
Elizabeth
Its_not_schrodingers_autism

Be a Cat!

Be a cat.

Accomodation for still-smouldering rubble:

In the middle of an autistic burnout?
Quiet. Patience.
Acceptance of frequent intermittent
nonverbal periods.
Plan, because my broken brain
screams if it’s asked.
Maybe check that I’ve eaten
because my appetite doesn’t function.
Use the floor-lamp
not the big light.
Leave me alone about not wearing a bra.
Be a cat.

Not in the middle of autistic burnout?
Be a cat.

-INSA

Elizabeth  – its_not_schrodingers-autism

 

Continue reading “Be a Cat!”

Cherry Blossoms

Photo by Elizabeth aka its_not_schrodingers_autism (Instagram)

I ventured out
into the world this evening.
I found the popcorn cotton candy
trees putting on their annual show.
Their spindly decayed branches
appeared resurrected
in beautiful bright
magenta and pale hues.
As in every year
I hope this happens to me too.
Renewed at the end of hardship
into the bright magenta
and pale hues
of the popcorn cotton candy trees.

Written by contributing author Elizabeth
aka its_not_schrodingers_autism (Instagram)
aka INSA online

See Contributing Authors page for bio.

The Tree

The Tree

The tree,
deformed and
scarred by life,
did not choose the ground
where it would grow.

The tree,
whose seed was put there
or fell there
in that barren, rocky place,
was forced to struggle.

The tree,
branches at odd angles
like arms pleading help,
was alienated amongst
buildings and concrete.

The tree,
arching backward,
peeled back its skin,
exposing the black cavity
within its twisted trunk.

The tree,
a monument
to the will to survive,
stands graceful
in its death.

By Linda Hanson – 2001

I sketched this tree and wrote this poem while sitting in a parking area in front of an arts center waiting for my daughters to finish a class. Often I am unable to tolerate being inside a building for more than a very short time because of my reaction to fluorescent lighting. Not only do I jerk and make noises when exposed to fluorescent lighting, but the sound of the lighting is often overbearing. Fluorescent lights have an effect on my brain that takes hours to recover from if the exposure is more than a few minutes. So I try to minimize exposure and spend lots of time waiting outside. If I have paper and a pen, waiting outside is not difficult at all because I can enjoy the clean air and whatever there is to see, even if it is a dead tree.

Although I had not yet been diagnosed with autism at the time I wrote this poem, I had been living with it my entire life. Much like the tree, I did not choose my circumstances in life. I could only make the best of the circumstances I was born into, even when it was a struggle.

Captive

Captive

Screams inside me
screams of horror,
depths not searched
where total horror
holds a captive
still in tears
held hostage more
than fifty years.

By Linda Hanson Denmark – 2003

Children with autism often have difficulty communicating so in effect, if there is no one looking out for their well being, they are in a hostage situation. The effects can last a lifetime. It doesn’t end when it ends.

Picassoul

Picassoul

My father used to cut out
little pieces of my soul
and stick them back
in odd places
where they didn’t belong
as my mother watched
and when I cried for her
she’d turn away
until after awhile
I stopped crying for her
while my father
kept cutting out
little pieces of my soul
and sticking them back
in odd places
where they didn’t belong
until I was like
a Picasso painting
and now I look in the mirror
and try to figure out
where all those pieces
were supposed to go
and maybe one day
I’ll see the picture the way
it should have been
before it was cubed
or maybe ———

I should just paint a new picture.

By Linda Hanson Denmark – 2003

I had previously posted this poem on Facebook as my own “Me too!” statement since the abuse came in many forms including sexual abuse. However, the theme of this poem can also be applied to my autistic self and probably many others like me.

When my autism diagnosis was made, my brain signals showed a lot of scrambling, where a signal was sent from one part of the brain to another and then to yet another and finally some part of my brain that would not normally process that info would handle it. The cognitive tests showed results all over the chart, from four percent in visual stamina to straight across 100% in the part of my brain I use in processing language from brain to hand.  Not from brain to mouth though!

Other areas in the cognitive testing showed impairment. I am unable to determine emotion from facial expressions of others. I have problems with auditory retention, which means that I retain only pieces of a conversation and often can’t make sense of it. If I get the same information in written format, I retain it very well, to the point where I could ace a test by reading the textbook the night before the test.

Before others can accept autism and show some understanding, we first have to accept ourselves. After I was diagnosed I initially felt a bit of dismay mixed with relief at finally having an answer. I began researching and reading everything I could find concerning autism and now have a whole shelf of autism books and continue to read all I can find online as well. What I began to notice in myself was an acceptance happening. I have to accept that I have these weak points and strong points and work with the materials I have available in order to paint that new picture.

 

 

The Stone

The Stone

I had my hiding places where,
when things were bad,
I sought refuge from the storm
– my dad.
I could retreat to think
and ponder why
my father hurt me so
and safely cry.
Cry because my mother
didn’t care
and when I needed her
she wasn’t there.
The common dog and cat
protect their own.
My mother stood and watched
——— a silent stone.

By Linda Hanson

I like to illustrate my poems because I am a visual thinker.

What profound message does this poem carry? Just this. Kids usually have two parents and one should never look the other way if they even suspect a child is being abused or treated unfairly. This is true whether the child has ASD or not.  However, often a child with ASD cannot speak for themselves or does not know how to ask for help. Maybe I would not still be having nightmares if the abuse had not gone on for my entire childhood.

The Hot Spoon

The Hot Spoon

Mommy makes hot tea
in a brown teapot,
then pours it in his cup.
He heats a spoon
in the hot tea
and looks my way.
I watch.
I breathe fast.
I want to run
and hide from him,
but don’t dare move.
I know what’s coming.
He does this often.
I can hear my heart
beating hard
as I choke on
a swallow of nothing.
I watch
as the spoon lifts
from the cup
and comes toward me,
hot,
very, very hot.
Quickly he presses
the hot spoon
on my little arm.
I want to run
and hide from him,
but don’t dare move
so I hide
inside myself.

Written by Linda Hanson -01-2008

I thought of my father as whisker man because he almost always had a stubble of whiskers, not enough to be soft but just enough to scratch my face raw when he gave whisker rubs to try to get a reaction. I believed all my childhood that he was not really my father. My sisters all had brown hair and blue eyes and I had blonde hair and green eyes. Regardless of whether or not he fathered me, he was the man in charge and determined to get a reaction from me, whether by a whisker rub, a hot spoon, or by picking me up by my hair.

I am sharing these poems and true stories because I want others to know that just because a child with autism does not respond, it does not indicate an empty shell with nothing inside. I could think. I could feel. I could be hurt badly enough to still cause nightmares in my senior years. It may even be possible that because of the sensitivities that come with autism and the inability to intuitively figure out human interactions, the damage may be even greater. Maybe also because many with autism are gifted with an incredible memory, the pain is not easily forgotten.