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Turn Down the Lights

Turn Down the Lights  (my brain under fluorescent lights)

Usually other people are trying to understand why my art is what it is. I have been pondering this question for awhile myself and want to share my fresh understanding.

First, I went back to review my diagnosis and the results of my autism testing.

 

A portion of my diagnostic report

The neuropsychologist noted there was a significant difference between the high average verbal comprehension index and the superior perceptual reasoning index. To understand what the significance was, I had to know what the different indexes indicated. I found this.

Okay! That made total sense! I always knew I was a visual thinker. Before I started understanding speech and being able to use speech to communicate, I had to learn to read and spell so that I could visualize what I was going to say and read it off from a blackboard in my head. Because I think in pictures and even running full color videos in my head, I have to translate the images into words, spelled out correctly and then read it off in my mind. Because my processing speed is only half that of my visual thinking speed, it takes awhile. It is even slower if I have to translate conversation from others into images so that I can understand and then back again into verbal language to respond in a conversation.  It is somewhat easier with written language than with spoken language, which is why when you read my writing, I may come across as an intelligent, articulate person. Yet, if you were to speak to me in person, especially under fluorescent lighting, you will see another side of me that may appear mentally slow.  Let me illustrate.

The painting at the top of the post is my immediate visual response to the question “How does fluorescent light affect you?”

My slowed down verbal response would be something like this.

“Fluorescent light shocks me. It makes me spasm and make noises. It makes my body twitch and I can’t keep my legs still. It is not just the light. It’s the sound too. It is like a squealing hearing aid sometimes and the sound swirls. The light swirls too. There is a pinkish fog that swirls and other colors that make me feel nauseous. I can’t tolerate it for long periods. My brain starts going dark.  I struggle just to get to the point where I can get away from the light and the noise and the swirling. It’s too much. It’s overload! I can’t do it!”

Turn Down the Lights

So there we have it! I am a visual thinker and can think with my paint and a canvas without having to interpret in between as I have to do when I communicate with words. Sadly, it leaves a communication gap when I am speaking to people whose brains work the way most human brains in this world work.

What can I do? When it involves fluorescent lighting, I made some positive changes. I changed every light in my home to LED which does not affect me adversely. Even my aquariums have LED lighting.  If I have to go to a store with fluorescent lighting, I plan my trip to get in and out as quickly as possible. If I need to wait in a waiting room where there are fluorescent lights, I look for a chair that is not against a wall because I have spasmed and slammed the wall too many times. I can take the stairs instead of an elevator with fluorescents. As much as I possibly can, I avoid fluorescent lighting.

Then, as regards the communication problems I have because of being a visual thinker, I can write, text instead of talking when possible, and to keep my visually thinking self balanced, I can keep on painting!

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Look Me in the Eyes

Eye Contact – Linda Hanson Denmark

Look Me in the Eyes

“Are you listening to me?
Look me in the eyes when I’m speaking.”
It hurts
But I can look at your eyes
Blue eyes with lots of gray
Dry eyes that never cry
Like my eyes are crying
Because you hit me
So I will look at your eyes
So I will hear what you are speaking
But I can’t hear you
When I look at your eyes
It hurts

By Linda Hanson Denmark

Humans are supposed to be able to read other peoples eyes. I have no idea what exactly they are supposed to be reading in the eyes. I am not wired for that. I can make eye contact but with quite different results.

When I was a child, eye contact was forced. I was afraid of the consequences if I did not look at my parents eyes. The result? I had a great fear of blue eyes most of my life because of my abusive father’s blue eyes, which made looking at any blue eyes extra difficult. My mom had hazel eyes, with very interesting colors and patterns. Her eyes made me squirm and I had to focus on the colors. I decided that she had turtle eyes. Eye contact hurt and never did help me understand anything better.

When I first look at someone else’s eyes, I always focus on one eye, then wonder if I should be looking at the other eye instead. I can’t for some reason, look into both eyes at the same time. I may look back and forth rather quickly until I settle on which eye to look at. Then begins an in depth study of colors, patterns, eye shape, condition, small veins showing on the white of the eye, size of the pupil, etc.

I study the colors in the makeup if it is a female wearing makeup, making a mental palette of the colors whether I like them or not. Loose eyelashes, eyelash color, length, thickness; nothing is missed. It sometimes feels like artificial intelligence in action. Scan, scan, scan, record.

If the other person is wearing glasses it gets even more complex. I study the lens to see if it is convex or concave, tinted or not; study the frames, and am absorbing and making mental images for my already very full library of memories.  Meanwhile, the words spoken by the person I am attempting eye contact with are gone. I usually have to ask the person to repeat what they said and briefly look away while I listen.

Some people believe that eye contact can be taught. If the neurological wiring is not there for reading whatever we are supposed to be reading, I think trying to teach eye contact to an autistic might be about as effective as teaching a blind person to make eye contact. The blind person may be able to learn to look in the direction the voice is coming from but they will not see.

Could the person demanding or expecting eye contact feel that without eye contact the autistic is not listening? The opposite is true. Could it be that the person expecting eye contact is uncomfortable not being able to read the eyes of the person to whom they are speaking, like the eyes can somehow mirror back their words to see how the hearer is affected by the words? That won’t work if the autistic person can’t do the looking and the hearing at the same time.

Is eye contact really for the benefit of the autistic person? Is it so that we will look less autistic? Is sameness a requirement of being human? Am I less human because I can’t hear the words and look in the eyes simultaneously?

Define human.

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Complex PTSD and Autism

Quote from Wikipedia:

“Adults with C-PTSD have sometimes experienced prolonged interpersonal traumatization as children as well as prolonged trauma as adults. This early injury interrupts the development of a robust sense of self and of others. Because physical and emotional pain or neglect was often inflicted by attachment figures such as caregivers or older siblings, these individuals may develop a sense that they are fundamentally flawed and that others cannot be relied upon.”

Complex PTSD becomes even more complex when the abuse happens to an autistic child. Coping mechanisms that neurotypical children have may not work at all for an autistic child. In our family, the father was abusive and the mother enabled and assisted with the abuse, and sometimes just ignored it. Never did she step in to protect her children. Three of my sisters, two biological and one adopted, developed multiple personality disorders from the abuse and have required years of therapy to help them make somewhat normal lives for themselves. One of my adopted brothers has an alcohol problem and the other became an abuser himself. I also spent several years in therapy years before the autism diagnosis was made. I was at that time (1990s) diagnosed with PTSD, Selective Mutism, Recurrent Depression and Disassociative Identity Disorder. I went through extensive testing several years ago and the diagnosis of Autism Spectrum Disorder and Obsessive Compulsive Disorder were added. So yes! It is complex indeed!

What happens with my C-PTSD is that rather than there being just one trigger or a few triggers, there are many unforeseen triggers. The reaction when triggered is like a reliving of the original experience, whether it was a rape, having my neck broken, being strangled, or being shocked with the stock prod. I feel exactly what I felt when the original trauma happened and it is often incapacitating. If I am in a public place, it can result in quite a scene as I experience what happened all over again. I can taste the blood in my mouth from having been hit across the face with my father’s belt for refusing to lower my pants, just from observing a child about to get a spanking and resisting. I can feel the waves of electric shock go through my body and collapse as silent screams resonate through my mind, from hearing someone mention using a stock prod. It goes on and on because I am not even able to remember all the traumatic events that happened during the seventeen years of living with my “parents”. Often I have to go through several episodes of a recurring memory, reliving it over and over until my adult mind can convince me that it is not going to happen again, that it is over. Then I can have a brief respite until something else triggers a reaction. This is Complex PTSD.

Often I will express myself with poetry while working through a remembered trauma. An interesting observation I have made when looking back at my poetry is that it seems to be written by a child at the level of development I was at when the trauma happened. I attribute this to the raw power the memories had to return me to the actual incident, as though having to go through it all over again.

The following poem was written after my husband suggested getting a stock prod to control a particularly mean buck goat we were having issues with.

The Stock Prod

When I think about the stock prod
I think about the pain
Of never knowing when our dad
Was going to strike again.

He’d often catch us unawares
Or if we turned our backs
He’d jab us from behind and
We just never could relax.

Sound sleep was impossible
With shocks to start the day
It made him laugh to see our fear
To him it was just play.

An instrument of torture
For kids and livestock too
‘Til the animals all trembled
When he stepped into their view.

One day old Babe, the milk cow
Was so consumed with fear
That when he tried to milk her
She just wouldn’t let him near.

She fought and kicked and trembled
In fear of Master Jack
So he picked up a two by four
And broke the milk cow’s back.

She needed a good lesson
Or so our father said
It didn’t teach her anything
‘Cause then the cow was dead.

So then instead of milk to drink
We had half a ton of meat
They ground her up cause she was tough
We kids declined to eat.

And then out came the stock prod
We cleaned our plates up quick
While daddy sat there grinning
As he jabbed his power stick.

So if you think the stock prod
Is a necessary tool
And the goat needs a good lesson,
Can’t we just send him to school?

By Linda Hanson Denmark – 2003

I often communicated with my husband through writing or poetry. Because of my difficulties expressing myself because of my autism, I usually was unsuccessful in explaining things or making a good case for something I felt strongly about. After my husband read this poem, he abandoned the idea of getting a stock prod and agreed to let me sell the offending goat and get a nicer one.

Child abuse when inflicted on any child can cause Complex PTSD if it occurs on multiple occasions. However, the same abuse on a child that has autism, can complicate and increase the difficulties the child already has to face every day for life. All child abuse is wrong. How wonderful for all the autistic children who have loving parents who cherish them and are helping them through all the daily challenges! I hope that in some small way, sharing my story may help even one child. Perhaps even one parent can speak up and protect her child.

Complex PTSD does not go away.

Autism does not go away.

One of these can be prevented.

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Communication

Communication One

They said that communication is words.
Spoken
Written
Ink and vocalizations filled to the brim with
meanings explicit and hidden.
But they mustn’t be laboured.
You mustn’t be slow.
You mustn’t scream.
Wail
Cry
Use your words they said.
But not those words,
and not like that.

Communication Two

They said that communication is about eye-contact.
But not all the time.
There are rules, and they concern;
arbitrarily intermittent durations,
expressions, extents of openness,
frequency of blinking.
Not an exhaustive list.
“You look me in the eyes”
But it hurts.
But then I can’t hear the words
But then I can’t use the words
you told me to use
the way you told me to use them.

Communication Three

Next they said that communication is about
body language.
Gestures that communicate
part of what isn’t spoken
part of what is spoken.
“Why do you do that with your hands?”
“Don’t just point, say something.”
It’s like the words, not like that.
Don’t move like that.
Don’t hit yourself.
Why was hitting me only ever for you?
Why is communication never about understanding?

-INSA
Elizabeth
Its_not_schrodingers_autism

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Be a Cat!

Be a cat.

Accomodation for still-smouldering rubble:

In the middle of an autistic burnout?
Quiet. Patience.
Acceptance of frequent intermittent
nonverbal periods.
Plan, because my broken brain
screams if it’s asked.
Maybe check that I’ve eaten
because my appetite doesn’t function.
Use the floor-lamp
not the big light.
Leave me alone about not wearing a bra.
Be a cat.

Not in the middle of autistic burnout?
Be a cat.

-INSA

Elizabeth  – its_not_schrodingers-autism

 

Continue reading “Be a Cat!”

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Cherry Blossoms

Photo by Elizabeth aka its_not_schrodingers_autism (Instagram)

I ventured out
into the world this evening.
I found the popcorn cotton candy
trees putting on their annual show.
Their spindly decayed branches
appeared resurrected
in beautiful bright
magenta and pale hues.
As in every year
I hope this happens to me too.
Renewed at the end of hardship
into the bright magenta
and pale hues
of the popcorn cotton candy trees.

Written by contributing author Elizabeth
aka its_not_schrodingers_autism (Instagram)
aka INSA online

See Contributing Authors page for bio.

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Patterns, Colors and Shadows

Cracking rocks as a small child, hour after hour, making piles and piles of cracked rocks, was a wonderful way to spend my days as a small child. I saw inside the rocks amazing patterns and designs that lit up my little heart. The same was true of my visits to the creek to watch the ripples on the water. I would toss a pebble and watch the ripples, then toss another and watch what happened when the second ripples bumped into the first ripples. Shadows also fascinated me, as did droplets of light coming through the trees, patterns of berry bushes loaded with berries, patterns made by pebbles in the creek bed, patterns in a dried up puddle and so many, many, beautiful patterns everywhere. I could happily spend my days watching and absorbing these things.

Recently I was messaging my sister in Colorado who has a BA in Fine Arts from the University of Lethbridge. I asked her if she felt I am out of balance after another family member criticized me to what I felt was an excessive degree. My sister told me to disregard the criticism and to keep painting. She understood my fascination with patterns because she grew up alongside me. She even was moved by one painting that reminded her of excursions we used to take into the forest to where there was a tiny cabin. The painting is the one on the upper right above. She could even feel how the sunlight filtered down through the trees.

My recent artwork has been an explosion of patterns, colors and shadows. I did them on 12 x 12 canvases and just hung them sitting loose on the screw so that I can lift any painting down and sit and enjoy the patterns and colors. It was suggested by a well meaning family member that I am out of balance, making too many meaningless paintings. It was pointed out to me that the cost of paint and canvases for filling my walls with these paintings was out of balance considering that my refrigerator was empty.

So am I the proverbial starving artist? I think not. I am the senior on social security who gets income only once a month, pays the bills and runs out before the next months deposit day. That’s all. I justify money spent on art supplies as a substitute for anxiety meds. If painting and looking at patterns and colors is calming to me and I do not need prescription meds at all, how is the cost of my art supplies even a concern. I also choose not to drive anymore and have no car expenses. I am badly affected by fluorescent lighting, noise levels and crowds, so I don’t go out to eat, go on cruises, or take trips. My preferred outing is a walk down to the river to observe patterns, colors and shadows.

Do I have too many paintings of patterns? Perhaps by some standards. However, I live with four dogs and two cats and they have never complained. My grandchildren are my most regular visitors and they love my paintings and make plenty of their own. I have a whole wall just for them.

Recently I hung a new painting in one of my displays and took down one to make room for the new one. My three year old grandson immediately noticed the missing painting and asked what I had done with the “fire” painting that he really loved. I explained that I wanted to hang up the new one, which he said he liked as well. He went through my house looking for another spot to hang the “fire” painting and showed me where I could put it by the coffee maker. I did. He said “Now every time I go in your kitchen I will be happy!”

These are some of my displays. I have twenty of the pattern paintings in my living room.

This is a slightly different post than my poetry and childhood history posts. I want to use this website as a means of helping others, both on the spectrum and off, to see inside the mind of a person with autism. Every person on the autism spectrum is different, yet there are so many similarities that when I look at the art of many artists who have ASD, I understand and feel their art.

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The Tree

The Tree

The tree,
deformed and
scarred by life,
did not choose the ground
where it would grow.

The tree,
whose seed was put there
or fell there
in that barren, rocky place,
was forced to struggle.

The tree,
branches at odd angles
like arms pleading help,
was alienated amongst
buildings and concrete.

The tree,
arching backward,
peeled back its skin,
exposing the black cavity
within its twisted trunk.

The tree,
a monument
to the will to survive,
stands graceful
in its death.

By Linda Hanson – 2001

I sketched this tree and wrote this poem while sitting in a parking area in front of an arts center waiting for my daughters to finish a class. Often I am unable to tolerate being inside a building for more than a very short time because of my reaction to fluorescent lighting. Not only do I jerk and make noises when exposed to fluorescent lighting, but the sound of the lighting is often overbearing. Fluorescent lights have an effect on my brain that takes hours to recover from if the exposure is more than a few minutes. So I try to minimize exposure and spend lots of time waiting outside. If I have paper and a pen, waiting outside is not difficult at all because I can enjoy the clean air and whatever there is to see, even if it is a dead tree.

Although I had not yet been diagnosed with autism at the time I wrote this poem, I had been living with it my entire life. Much like the tree, I did not choose my circumstances in life. I could only make the best of the circumstances I was born into, even when it was a struggle.

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Captive

Captive

Screams inside me
screams of horror,
depths not searched
where total horror
holds a captive
still in tears
held hostage more
than fifty years.

By Linda Hanson Denmark – 2003

Children with autism often have difficulty communicating so in effect, if there is no one looking out for their well being, they are in a hostage situation. The effects can last a lifetime. It doesn’t end when it ends.

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The Stone

The Stone

I had my hiding places where,
when things were bad,
I sought refuge from the storm
– my dad.
I could retreat to think
and ponder why
my father hurt me so
and safely cry.
Cry because my mother
didn’t care
and when I needed her
she wasn’t there.
The common dog and cat
protect their own.
My mother stood and watched
——— a silent stone.

By Linda Hanson

I like to illustrate my poems because I am a visual thinker.

What profound message does this poem carry? Just this. Kids usually have two parents and one should never look the other way if they even suspect a child is being abused or treated unfairly. This is true whether the child has ASD or not.  However, often a child with ASD cannot speak for themselves or does not know how to ask for help. Maybe I would not still be having nightmares if the abuse had not gone on for my entire childhood.